William is in the hospital with pneumonia getting a tune up. He already has his PICC line in and they have started the antibiotics he needs. I really wish I was there to help take care of him and just be with him.
I think I can safely say we are frustrated with the wait....it's been 16 weeks so far. My birthday and our anniversary are May 5th so I'm going to head up and spend some quality time with him then. Boy do I miss that man. I know he's being brave and strong for me. He's working so hard in rehab. He's up to walking at a 3 mph pace, which is almost triple where he started.
I'm trying to stay busy and that's not hard between work, housework some outdoor activities and being a mom.
People keep asking how much longer will he be gone and my answer is x plus three months. X being the day he gets new lungs and a liver. I'm so ready for day X. Please pray and send all your healing to William that his new life is coming soon.
I'm sorry I haven't blogged lately just please know its so hard for me to say we are still waiting and waiting. Just this week it has become agonizing to think about how much longer it could be. I just have to know that the right set of organs are coming and they will be perfect.
I love you William. And I miss you so much.
Lesson of the day: It's ok that it's not day x, because soon it will be!
This is a story of our journey with Cystic Fibrosis, transplant and all the life that happens in between. Please join us as we enjoy the up's of life, ride out the down's and learn from every lesson.
Wednesday, April 25, 2012
Sunday, April 1, 2012
FNFUCF!!!
I hate it! The waiting we must endure. The monotony that William is having to deal with. I'm terrified and so sick of not being with my husband. I know this is for a chance at real life but he's been gone 14 weeks already.
Thanks to all those that helped make our garage sale a huge success. All those that donated items, those that help set up and run the sale, and my wonderful mom that ran the whole show. If anyone of you have items for garage sale, would be willing to help with fundraising activities in either KC or Memphis please let me know. We have almost 25% of what we need for transplant cost and some great ideas for more fund raising! Please continue to share our story.
Sorry I'm so bad at keeping up with this. It's just, all there is to tell is....still waiting. I promise when there is something to share good or bad I will keep everyone updated.
Lesson of the day...praying for patience always means you're in for a long WAIT!
Thanks to all those that helped make our garage sale a huge success. All those that donated items, those that help set up and run the sale, and my wonderful mom that ran the whole show. If anyone of you have items for garage sale, would be willing to help with fundraising activities in either KC or Memphis please let me know. We have almost 25% of what we need for transplant cost and some great ideas for more fund raising! Please continue to share our story.
Sorry I'm so bad at keeping up with this. It's just, all there is to tell is....still waiting. I promise when there is something to share good or bad I will keep everyone updated.
Lesson of the day...praying for patience always means you're in for a long WAIT!
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